Resilience in the Face of Multiple Sclerosis

There are nearly 1,000,000 Americans living with multiple sclerosis, but their personal stories are rarely told. Resilience in the Face of Multiple Sclerosis is a narrative non-fiction book about incredible people who suffer from MS, and I seek to share the wisdom implicit in their lives and achievements. My five subjects include a neurologist, a psychiatrist, a political activist, a young blind man, and a woman with advanced multiple sclerosis, all who live productive and fulfilling lives despite significant adversity. For example, Chapter Six describes the amazing story of Sandra Orozco. She is a health care administrator whose life is abruptly turned upside-down by the disease, and she battles the depths of depression and family conflict. However, undeterred by vision loss, pain, and paralysis, she utilizes her personal strength, social resources, and religious faith to extricate herself from despair and inertia. She goes on to reinvent herself and live a joyful life as a political activist, well-known for speaking out against the infamous city of Bell scandal along with many other political achievements.

The stories are written from both a personal and clinical perspective, including direct quotes and medical images. The text explores the science and psychology of resilience along with ways to improve resilience through therapy and mindfulness. The biographies are intimate, emotional, heart-wrenching, and heart-warming. They reflect the triumph, not of modern medicine, but of unique individuals. The stories and their lessons are practical and inspiring, with much of the message coming through the powerful personal anecdotes. Each chapter provides useful takeaways, and the conclusion summarizes helpful guidelines on how to lead a productive and resilient life, regardless of circumstances.

The book is intended for a general audience and has minimal technical language. It contains contributions from five psychologists including Dr. John Forsyth (Acceptance and Commitment Therapy expert and author of several books) and Dr. Mark Katz (Resilience specialist and author of several books). Chapter Seven features an interview with Mabel Katz, a well-known expert in the Hawaiian philosophy of Ho'oponopono.